Hello, all! I am a researcher at Carnegie Mellon University performing a study on how people talk about their personal experiences with significant illness. You are eligible to participate if you 1) have personal experience with a prolonged illness, medical condition, or disability (physical or mental) that impacts your daily life; 2) which you feel comfortable sharing with a research team; 3) feel comfortable typing short answers to prompts in English; 4) have access to a device which can video-call and perform text processing; 5) are 18 years of age or older and a United States citizen. The study will be held remotely in a single 1-hour video call with a Carnegie Mellon University researcher. The study involves writing a short response about your personal illness experience and pays $15 per participant. If you are interested, or have additional questions about this study or its eligibility, contact: cmusurveynarrativeillness@gmail.com (or you can DM me here). [IMPORTANT EDIT: It's possible web scrapers have taken text from this post to fake messages pretending to be a part of this survey. I'm looking into options on how to deal with that, but I want to inform anyone interested in the study that there are only two ways to get into contact with this study--you can DM me through my user account here on kintsugi, or you can email the specific gmail address in this post. We will never text you. We will never call you. We will not email you *except* through the listed gmail account, and *only* to respond to emails sent to us. Apologies for any confusion.]
Yo, Luke is my IRL friend and he's doing some really neat research!! I participated in the pilot so I can't really do the study itself. But it was pretty cool and I found it interesting. Idk what else to say because I probably shouldn't spoil anything. But I asked/offered for him to post here, because I figured if anyone's going to have experiences with significant illness, it'll be the kintsugi crowd LOL
I thought I'd do this, since it's on kintsugi. I got a text message with a link to the survey, but the first thing I saw was a notice that only people who use a hearing aid (or know someone who does) was eligible to paticipate. I don't, so no matter. (I have other kinds of mdical issues.) But that is quite different from the description here. Is this some kind of marketing?
Hi. Original poster here. I have no idea where you got a text message from. You can DM me through kintsugi, or email me at the provided gmail address, and those are the only methods through which *anyone* should contact you about this specific study. Did the text message say anything about this kintsugi thread? If it did, then it means someone is harvesting this survey's information somehow(?) and using it for scams probably(??) and I definitely have to stop that from happening. This is not marketing. It's just a survey looking to gather some data about how people talk to various audiences about their experiences with illness and disability. If you email/DM me, I can send you very official IRB and university consent forms to help you verify that. It's also unrelated to hearing aids in specific. If you or someone who wants to participate does use a hearing aid, that is a medical condition that would qualify, but any other significant illness, disability, or condition qualifies as well. I'm sorry for the weirdness. Again, if the text message said anything in specific to make it look like it was part of this study, I'll take steps to stop that from happening. That's wild.
Ahh, this forum isn't private so web scrappers can get at it. Let me know if you want me to move it somewhere account locked
